نوع مقاله : مقاله پژوهشی

نویسندگان

• یوسف جمالی ¹
• مریم فاتحی زاده ²
• محمدرضا عابدی ²

¹ دانشجوی دکتری مشاوره، دانشگاه اصفهان، اصفهان، ایران.

² استاد گروه مشاوره، دانشگاه اصفهان، اصفهان، ایران.

چکیده

وجود یک عضو مبتلا به اوتیسم در خانواده طیف وسیعی از چالش‌ها و مشکلات را برای اعضای خانواده ایجاد می‌کند. پژوهش حاضر باهدف کشف چالش‎ها و مشکلات ارتباطی خانواده‍های دارای فرزند مبتلا به اوتیسم و دستیابی به شبکه مضامین این چالش‎ها و مشکلات انجام شد. روش پژوهش از نوع کیفی و روش تحلیل از نوع تحلیل مضمون بود. جامعه آماری خانواده‍های دارای فرزند اوتیسم (7 تا 18 ساله) شهر اصفهان (240 خانواده) بودند، 18 خانواده در پژوهش شرکت کردند. روش انتخاب شرکت‍کنندگان از نوع هدفمند بود. جهت گردآوری اطلاعات از مصاحبه نیمه ساختاریافته استفاده شد. یافته‎ها‎ی پژوهش 675 کد اولیه، 23 مضمون پایه، پنج مضمون سازمان‍دهنده و یک مضمون فراگیر را نشان داد. مضامین سازمان‍دهنده استخراج‌شده عبارت بودند از: مسئله‎های اجتماعی، فردی، مرتبط با تعامل با کودک، کمبود زمان و درون‍خانوادگی. مضمون فراگیر نیز فرهنگ اجتناب از اوتیسم بود. یافته‏های این پژوهش نشان دادند که اتخاذ رویکردی که در سطح جامعه نگرش‌های پذیرش نسبت به اوتیسم را تشویق ‌کند، می‌تواند به‌عنوان اولین گام در جهت بهبود محیط انگ‎زدایی و فرهنگ اجتناب از اوتیسم باشد. برنامه‎های فرهنگی مناسب در سطح جامعه نیز می‎تواند به افزایش آگاهی در مورد اوتیسم و اختلالات رشدی کمک کند و خانواده‎ها را با منابع مداخله به‍موقع پیوند دهد.

کلیدواژه‌ها

• اوتیسم
• خانواده
• شبکه مضامین
• مشکلات ارتباطی

عنوان مقاله [English]

Discovering the Thematic Network of Communication Problems of Families Have Children with Autism Spectrum Disorder

نویسندگان [English]

• Yusef jamali ¹
• Maryamsadat Fatehizade ²
• Mohammad Reza Abedi ²

¹ PhD Candidate in Counseling, University of Isfahan, Isfahan, Iran.

² Professor, Department of Counseling, University of Isfahan, Isfahan, Iran.

چکیده [English]

Abstract
The study aimed to investigate the effect of increasing patience group training on self-efficacy and attitude of mothers with exceptional children. This quasi-experimental study involved a pre-test-post-test design with a control group. The population of the study included all mothers with exceptional children in Mashhad who were registered with the exceptional education department in Khorasan province. Voluntary participation and sample selection using random sampling were utilized. Thirty-two mothers of exceptional children were randomly assigned to experimental and control groups (16 participants per group). The instruments used to measure the study variables were the patience, Domka self-efficacy, and parents' attitudes toward exceptional children questionnaires. A pre-test was conducted on both groups. The experimental group underwent ten sessions of patience training, while no training was provided to the control group. After the training sessions, both groups took the questionnaires again (post-test). Data were analyzed using univariate analysis of covariance (ANCOVA) and multivariate analysis of covariance (MONCOVA). The results revealed that patience training led to enhanced self-efficacy, reduced hopelessness, improved attitude, increased failure tolerance, and lower levels of shame in mothers with exceptional children. As a result, it is recommended that counselors and psychologists focus on patience training in family education programs and groups of parents of exceptional children.
Keywords: Patience, Self-Efficacy, Attitude, Mothers Of Exceptional Children.
 
 
 
Extended Abstract

Introduction

When an exceptional child is born, the parent's experience of parenting and the process of acceptance will be different. (Azad Yekta, 2021). An exceptional child is defined as a child with mental, physical, social, or emotional disorders that may stop or slow down their growth and development. This could lead to behavioral and emotional issues, and pose challenges for parents (Joe and Associates, 2020, Afsari & Zeinali, 2021). Parents may feel a wide range of emotions, including anger, guilt, and disappointment, in their struggle to adapt to the situation of having an exceptional child. This experience has been linked to mental health issues and marriage problems and often leads to a need for receiving educational and empowerment programs (Rane, 2020; Kargar and Asghari Ebrahim Abad, 2015; Rezapour Mirsaleh and associates, 2020). One of the primary reasons for educating mothers is to shape, change and improve their behavior. Group education has been found to be among the most effective approaches in recent years (Norouzi and Associates, 2019). However, there has been a lack of focus on the importance of patience in regard to factors such as self-efficacy and attitude. The potential benefits of cultural and spiritual practices in improving self-efficacy and changing attitudes towards exceptional children have also not received sufficient attention.
This study aims to investigate the effects of a patient-education group based on cultural and religious teachings to enhance endurance and acceptance of hardships in the mothers of exceptional children. The goal is to examine whether this intervention will improve self-efficacy and attitudes in these mothers or not.

Literature review

The experience of living with an exceptional child can be highly challenging for mothers, who are under tremendous mental pressure to help their children navigate various difficulties and maintain their well-being. In this environment, their attitude towards their children is crucial, as it can greatly impact their ability to manage the various challenges they face and ensure their family's well-being (Jebelli & Khademi, 2019; Rani, 2020). Belief in one's self-efficacy has been identified as an important factor in influencing people's attitudes. Triandis explains that improvements in attitude can lead to increases in self-efficacy (Namazi & Associates, 2020). Along with positive attitudes, self-efficacy can fulfill basic cognitive needs such as a sense of worth, autonomy, and social relations. Moreover, the journey towards building self-efficacy can be a challenging one for exceptional children's parents, with potential ups and downs (Smart, 2016).
The role of self-efficacy in life is well-documented, particularly in the context of providing mothers of exceptional children with the necessary skills and support to navigate the challenges they face. Improving self-efficacy has been identified as a priority for these mothers and makes it urgent to develop interventions to address this need. Patience, as outlined by Currier and associates (2015), is central in allowing individuals to find meaning and purpose in times of difficulty. This can provide a valuable framework for understanding the role of self-efficacy in supporting mothers of exceptional children to navigate challenges and find a sense of purpose in their roles.
Patience can be defined as an individual's capability to delay a desired outcome without experiencing negative emotions or reactions towards the present situation (Roberts & Fishbach, 2020). Patience, from a psychological perspective, refers to one's ability to effectively manage internal and external pressures. This can involve learning to respond to challenging situations in a way that reduces stress levels and promotes a sense of emotional security. Psychologists identify three main components in the development and maintenance of patience: emotional, cognitive, and behavioral. These components relate to an individual's ability to tolerate uncertainty, regulate their emotions and beliefs, and modify their behaviors accordingly (Ghebari Bonab & Associates, 2017). Overall, patience

Methodology

This research study examines the impact of patience education on the self-efficacy and attitudes of mothers with children with special needs. The study utilizes a quasi-experimental design, with a randomized control group consisting of two groups of moms: the examination group that received 10 training sessions on patience and the witness group that did not receive any training. The study collected data from 32 moms via pre-testing and post-testing, using questionnaires focused on patience, self-efficacy, and parental attitudes towards exceptional children. This is an important area of research as there is a need to identify and implement effective methods to improve the well-being of mothers with children with special needs.
Introduction to intervention program
Based on this information, it appears that the 10-session training program focused on building patience through a variety of strategies, including:

Learning to use software to facilitate the process
Understanding pain conservation and acceptance
Developing a new perspective on life events
Acquiring an understanding of the process of grief
Recognizing the blessings bestowed by God
Learning to not put oneself in pain while raising exceptional children
Finding inspiration by studying the story of Moses and Khizr
Distincting between tolerance and patience
Improving anger management skills
Developing a sense of positivity
Understanding the different types of angry people and managing anger
Developing existential capacity and assumptions
Identifying ways to develop patience, including changing attitudes towards life and recognizing that patience is a learnable skill
Studying holy verses on patience and its consequences, and engaging in Q&A.

Overall, the program aimed to promote patience among mothers of exceptional children through a combination of educational, spiritual and emotional tools.

Results

The research data was analyzed using single and multi-factor analysis of covariance, and the results indicate that the training of patience can have a positive effect on self-efficacy, change of attitude, failure, disappointment, shame, and patience of mothers of exceptional children.
 
Table 1. results of comparing two groups in self-efficacy and patience.




factor


Source for change


Sum of squares


Degree od freedom


Average sum of squares


F


P


Effect size




Self-effocacy


Pre-test


84/94


1


84/94


10/1


30/0


03/0




group


17/692


1


7/692


08/8


008/0


21/0




error


34/2483


29


63/85


 


 


 




total


81689


32


 


 


 


 




 


Pre-test


75/360


1


75/360


96/5


02/0


17/0




Patience


group


05/684


1


05/687


35/11


002/0


28/0




 


error


93/1754


29


51/60


 


 


 




 


total


256823


32


 


 


 


 




Based on the table provided, it is clear that there is a significant difference between the examination group, which received the training of patience, and the witness group, which did not receive training, in terms of self-efficacy and patience. Specifically, the examination group demonstrated higher self-efficacy and patience in the post-test phase compared to the pre-test phase, indicating that the training of patience has been effective in improving these outcomes. These findings suggest that the training of patience may be an effective intervention strategy to enhance the well-being of mothers of exceptional children.

Discussion

From the findings of this study, it is evident that training in patience can positively influence the self-efficacy, change of attitude, failure, disappointment, shame, and patience of mothers of exceptional children. Patience is an innate human trait that enables individuals to develop the ability to handle life pressures with resilience. The ability to defer one's own interests with the hope of attaining knowledge or a desirable outcome in the future is critical for personal growth and well-being. By improving their patience skills, mothers of exceptional children may be better equipped to handle the challenges of raising children with special needs.

Conclusion 

The study showed significant differences in the self-efficacy, change of attitude, failure, disappointment, shame, and patience levels of mothers of children with exceptional needs between the examination and witness groups. As a result, it is recommended that counselors and psychologists consider incorporating patient training in the family education and group programs of mothers of children with exceptional needs to enhance their well-being.

Acknowledgements

We extend our gratitude to the mothers who participated in the study and provided valuable insights into the effect of patient training on their well-being. Their participation was crucial in helping us gather important data and make meaningful contributions to the field. We hope that this research can contribute to developing more effective interventions to support the needs of mothers of exceptional children.

کلیدواژه‌ها [English]

• Autism
• Family
• Thematic Network
• Communication Problems